this post was submitted on 14 Feb 2024
33 points (92.3% liked)

Autism

6844 readers
5 users here now

A community for respectful discussion and memes related to autism acceptance. All neurotypes are welcome.

We have created our own instance! Visit Autism Place the following community for more info.

Community:

Values

  • Acceptance
  • Openness
  • Understanding
  • Equality
  • Reciprocity
  • Mutuality
  • Love

Rules

  1. No abusive, derogatory, or offensive post/comments e.g: racism, sexism, religious hatred, homophobia, gatekeeping, trolling.
  2. Posts must be related to autism, off-topic discussions happen in the matrix chat.
  3. Your posts must include a text body. It doesn't have to be long, it just needs to be descriptive.
  4. Do not request donations.
  5. Be respectful in discussions.
  6. Do not post misinformation.
  7. Mark NSFW content accordingly.
  8. Do not promote Autism Speaks.
  9. General Lemmy World rules.

Encouraged

  1. Open acceptance of all autism levels as a respectable neurotype.
  2. Funny memes.
  3. Respectful venting.
  4. Describe posts of pictures/memes using text in the body for our visually impaired users.
  5. Welcoming and accepting attitudes.
  6. Questions regarding autism.
  7. Questions on confusing situations.
  8. Seeking and sharing support.
  9. Engagement in our community's values.
  10. Expressing a difference of opinion without directly insulting another user.
  11. Please report questionable posts and let the mods deal with it. Chat Room
  • We have a chat room! Want to engage in dialogue? Come join us at the community's Matrix Chat.

.

Helpful Resources

founded 1 year ago
MODERATORS
BackOnMyBS@lemmy.world
33
PDA and medication refusal (lemmy.world)
submitted 9 months ago by spainball@lemmy.world to c/autism@lemmy.world
48 comments fedilink hide all child comments
 

I have a 10 yo daughter with PDA autism (and ADHD) who decided to refuse her medication in early January. We have noticed a big difference from when she took them so we really want her to get back on them, but nothing we have tried works. Anyone with some experience they want to share? We are grasping for straws at this point. Help

you are viewing a single comment's thread
view the rest of the comments
[–] spainball@lemmy.world 1 points 9 months ago (3 children)

I do believe that the autism part of her is whats causing the most issues, PDA (Pathological Demand Avoidance, meds being the demand in this case) specifically. But like you say she is subject to outside circumstances all the time and specifically (I should probably have mentioned this one) a change of school at the same time she stopped taking her meds. Her previous school was garbage, the new one is miles better but we still struggle with attendance because of previous experience. We have really tried connecting the school and meds situations but not come up with anything that has helped either

[–] graveyardchickenhunt@lemmy.world 1 points 8 months ago* (last edited 8 months ago) (2 children)

Is it possible that she's rebelling because she - in her mind - got ripped away from friends? Maybe she's also overwhelmed?

I would say you definitely have the trigger point in mind then. Who knows what else is going on in the new school that you as a parent don't get to know easily?

I can only think how I'd go over it with my daughter, so this might not work for you. I would leave the matter of the meds to the side for any discussion for a little bit. Figure out the rest of her circumstances first, then reintroduce the meds once she feels understood again. This can also be very soon. Just don't make the talks about the meds for now. Again, I don't have experience with PDA but if you push too much too often it can be counterproductive even before factoring that in.

You will most likely have to get a new prescription for the strattera as well, as going from zero back to full will be problematic. It needs ramping up time with the dosage. Otherwise there will be side effects that might lead to setbacks. That's personal experience.

[–] spainball@lemmy.world 2 points 8 months ago (1 children)

I think youre right, we have talked about it and she says she misses some of the friends from her old school. We try our best to maintain her connection with the old crew, its not very hard as they mostly live in our neighborhood, but she also avoids them to some extent because she feels guilt towards them having to stay in a school thats as bad as it is. She was involved in the decision to change school, it was a very hard one to make. But despite the problems it comes with we have no regrets because of the complete lack of interest/knowledge in the old school. We actually have a lot of insight in the new school as well, they are extremely communicative and helpful, so that helps a lot at least.

We have also already taken that step to stop demanding her to take the meds or even mention them (mostly, we can do better), very recently though. And we have a meeting with her doctor next week to discuss how we proceed

[–] graveyardchickenhunt@lemmy.world 2 points 8 months ago

You got this! Best wishes to you and your family.