this post was submitted on 08 Jul 2024
157 points (98.8% liked)
Autism
6862 readers
110 users here now
A community for respectful discussion and memes related to autism acceptance. All neurotypes are welcome.
We have created our own instance! Visit Autism Place the following community for more info.
Community:
Values
- Acceptance
- Openness
- Understanding
- Equality
- Reciprocity
- Mutuality
- Love
Rules
- No abusive, derogatory, or offensive post/comments e.g: racism, sexism, religious hatred, homophobia, gatekeeping, trolling.
- Posts must be related to autism, off-topic discussions happen in the matrix chat.
- Your posts must include a text body. It doesn't have to be long, it just needs to be descriptive.
- Do not request donations.
- Be respectful in discussions.
- Do not post misinformation.
- Mark NSFW content accordingly.
- Do not promote Autism Speaks.
- General Lemmy World rules.
Encouraged
- Open acceptance of all autism levels as a respectable neurotype.
- Funny memes.
- Respectful venting.
- Describe posts of pictures/memes using text in the body for our visually impaired users.
- Welcoming and accepting attitudes.
- Questions regarding autism.
- Questions on confusing situations.
- Seeking and sharing support.
- Engagement in our community's values.
- Expressing a difference of opinion without directly insulting another user.
- Please report questionable posts and let the mods deal with it. Chat Room
- We have a chat room! Want to engage in dialogue? Come join us at the community's Matrix Chat.
.
Helpful Resources
- Are you seeking education, support groups, and more? Take a look at our list of helpful resources.
founded 1 year ago
MODERATORS
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
Based on some of your other comments, it would be interesting if you logged your blood pressure and pulse throughout the day. Once in the morning, before/after meals, evening, and whatever times seem like they may be relevant.
I got a simple automatic cuff type from the grocery store. They make some that can do it on your wrist too, which is a little easier to carry around. Mine has a history function. Smart watches/trackers can monitor your pulse more often.
Check your blood work. I get all the details in MyChart (Epic) and can even compare from previous results. If there isn't an app, get your records and input it manually in a spreadsheet or other app that hopefully doesn't harvest your data. If they are not doing regular blood work a couple times a year, they are doing you a disservice.
How is your sleep? You may not be sleeping as well as you think. This is priority 1. Wash your sheets. Clean sheets are awesome.
You could be depressed or have an undiagnosed mental illness. This is ok, but you have to talk to someone. It is hard as hell to make that phone call, but your mental health is worth it. Your mental health is worth everything. I did not check if you were female, but note that birth control can cause this shit. Hormones suck.
I think you said you were in pain or discomfort? If you are, take notes on the type of pain, where, how often, duration and anything you were doing. By the time I get to the doctor, I often can't visualize or remember the exact sensation. You could easily have something in your environment bothering you, a food allergy, gall bladder issues, thyroid, or a whole host of random shit. Switch to fragrance free laundry detergent. Maybe cut out caffeine. Just be sure to only change one thing at a time.
Don't let doctors gaslight you or downplay your issues. Advocate for yourself and take notes. You can even have a friend go with you to the doctor if you have a lot of anxiety. They can take notes for you and potentially give insights and ask questions you may not think of.
This. Especially looking at the quality of your sleep (poor sleep can trigger or exacerbate depression). There is a high prevalence of sleep-related issues in the autistic community. If you haven't had a sleep study done, I recommend doing it (it's uncomfortable and not a good night's sleep, but it will help identify issues such as sleep apnoea or restless leg syndrome).
Also go through all the typical sleep hygiene stuff (I know it can be annoying and tedious, but these factors can play a bigger role in autism than for neurotypicals due to sensory issues) such as temperature, noise and light. Are your pillow and mattress comfortable and providing the support you need, or are you tossing and turning, or waking up sore or uncomfortable?