this post was submitted on 01 Jul 2026
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Are you also really limber? Can you touch your toes and you don't even stretch every day? Or are you a goddess at yoga?
Do you have a problem knowing when you are hungry or thirsty? Like, sometimes do you put a glass of water to your lips and suddenly you gulp it at once and are surprised? Do you have to gauge hunger by recognizing that you are tired or angry instead of simply hunger urges?
I have both ehlers danlos and adhd, so absolutely, yes.
Same, girl. I figured you did and wanted to make sure you knew about it. Also, since you've hit the bullseye, I'm going to assume you need to make sure and sort out any gender stuff in a way that feels good to you. Did you get to that already too? XD
lol, every tenth comment includes “probably an egg,” you mind reader
Lol, glad you're on top of all that. I'm not trying to be intrusive, it just would have been really helpful if decades ago when I knew I had stupid 2 setting sweat glands, I also knew about everything else that usually comes with it.
I have found that meditation, breathing, and yoga give me more conscious control over parts of my unconscious nervous system than most people are usually allowed. It helps with the erratic responses. It's like whoever was supposed to be in control of things ain't there, but I can be there if I remember and work it myself. That helps with the crummy digestive system, temperature responses, lack of feedback, and runaway emotional states.
It can be exhausting, like working a complex control panel you have to pay complete attention to, but it's a great tool to have.🧡
No, not at all, I appreciate the insight and would love to have been given a hint about the gender thing younger. I didn’t realize those were related to sweating at all, and frankly I thought the flexibility was ED, the eating habits were ADHD, and the gender was autism, so I’m surprised you got all that. I know they've got high comorbidities, but I’m very interested in what links those specific symptoms.
It was just the comorbidities that tipped me off. Well, that and the added clue that you are here specifically. ED+ADHD+autism+lemmy is an almost guaranteed hit for also having gender fuckery.
ED alters collagen, a key brain component. This can cause the system responsible for gender congruency to get incorrect, or no feedback at a key stage in development. It can cause other systems to get incorect feedback too, leading to autism.
Gender dysphoria can cause childhood cptsd, which presents as autism or ADHD as the brain grows wonky.
Having a differently connected, autistic network can cause the system responsible for gender congruency to get the wrong, or no signals at all during that key stage in development.
So, I don't think it's one thing really. It's just a bunch of stuff that triggers eachother.
Shot in the dark: POTS, too?
(sidenote: I just started beta blockers for my POTS and they've both helped immensely and given me the fragrant armpits of a teenaged boy. I've swapped to more aggressive armpit soap and that seems to have helped.)
That one luckily not so far. I do get lightheaded upon standing sort of often, just not enough to lose consciousness or anything like that.
lol I was reading their comment and thinking yeah this person doesn’t know ADHD makes those body signals basically impossible to notice