this post was submitted on 18 Oct 2024
16 points (90.0% liked)

Ask Lemmy

26875 readers
2466 users here now

A Fediverse community for open-ended, thought provoking questions

Please don't post about US Politics. If you need to do this, try !politicaldiscussion@lemmy.world


Rules: (interactive)


1) Be nice and; have funDoxxing, trolling, sealioning, racism, and toxicity are not welcomed in AskLemmy. Remember what your mother said: if you can't say something nice, don't say anything at all. In addition, the site-wide Lemmy.world terms of service also apply here. Please familiarize yourself with them


2) All posts must end with a '?'This is sort of like Jeopardy. Please phrase all post titles in the form of a proper question ending with ?


3) No spamPlease do not flood the community with nonsense. Actual suspected spammers will be banned on site. No astroturfing.


4) NSFW is okay, within reasonJust remember to tag posts with either a content warning or a [NSFW] tag. Overtly sexual posts are not allowed, please direct them to either !asklemmyafterdark@lemmy.world or !asklemmynsfw@lemmynsfw.com. NSFW comments should be restricted to posts tagged [NSFW].


5) This is not a support community.
It is not a place for 'how do I?', type questions. If you have any questions regarding the site itself or would like to report a community, please direct them to Lemmy.world Support or email info@lemmy.world. For other questions check our partnered communities list, or use the search function.


Reminder: The terms of service apply here too.

Partnered Communities:

Tech Support

No Stupid Questions

You Should Know

Reddit

Jokes

Ask Ouija


Logo design credit goes to: tubbadu


founded 1 year ago
MODERATORS
 

This is mostly intended as a question for people with severe chronic issues of a magnitude that significantly alter their function to the point of relying on others for basic needs. However, anyone is welcome to reply. From personal experience this type of pain is hard to describe and hard for others to understand, especially the psychological side.

So I'm asking because I really don't understand how cannabis works for anyone as pain relief. I have also been on most available opioids and they largely have no effect. They only impact my focus in such a way that I do not care about doing anything or about the pain. It is like they impact anxiety, but that does not do anything for the underlying physical issue. In some cases like tramadol, I get so disconnected from my typical self awareness that I could spiral into a dumber version of myself like being in a figurative pit I cannot escape.

Seriously, I use a few games and the times it takes me to complete harder levels to gage how pain or meds are impacting my cognitive function. Long term I use the scope, depth, and my project completion capabilities to gage if I am acting like myself long term. This is what has pulled me off of several meds long term; I simply was not myself in capabilities. The meds made me care less about the pain, but I am interested in a more productive life, not caring less about the thing that is ever present. The only drugs that made the pain go away are the kind that require constant monitoring in the Intensive Care Unit in a hospital.

Am I an outlier here; simply more self aware of the way pain treatments alter the mind and only indirectly impact the real issue? Does caring less satisfy your needs? Is anxiety a large part of your functional life?

you are viewing a single comment's thread
view the rest of the comments
[–] indomara@lemmy.world 4 points 3 weeks ago

I have nerve pain and understand the feeling of the meds not taking the pain away, and the knowledge that there is a trade off with taking them. I have refused to up my dose, but try literally everything else.

Unfortunately I am allergic to codiene and natural opoids, and so tramadol is my long term pain management medication.

I also take broad spectrum cbd oil and flower, triple strength fish oil for inflammation, magnesium, etc. I have also been using lignocaine patches over the nerve roots after reading a study that showed promising results, and despite it not making any sense to me that they should work topically, it does seem to help.

Besides medications and supplements, I use a TENS unit, IR heating pad, ice packs, massage gun, and positioning to reduce pain on bad days.

I have tried every locally available treatment, experimental medication, therapy, consulted with pain doctors and surgeons. Unfortunately nothing has helped so far.

On good days, I can spend 4 - 5 hours up at most, and will pay for it the next day. Most of my time is spent in a zero gravity bed.

I don't like taking the pain meds, but acknowledge that taking them means I can do more. Push further. It's not a tradeoff I like either, so most of the time I don't.