Ask Lemmy
A Fediverse community for open-ended, thought provoking questions
Rules: (interactive)
1) Be nice and; have fun
Doxxing, trolling, sealioning, racism, toxicity and dog-whistling are not welcomed in AskLemmy. Remember what your mother said: if you can't say something nice, don't say anything at all. In addition, the site-wide Lemmy.world terms of service also apply here. Please familiarize yourself with them
2) All posts must end with a '?'
This is sort of like Jeopardy. Please phrase all post titles in the form of a proper question ending with ?
3) No spam
Please do not flood the community with nonsense. Actual suspected spammers will be banned on site. No astroturfing.
4) NSFW is okay, within reason
Just remember to tag posts with either a content warning or a [NSFW] tag. Overtly sexual posts are not allowed, please direct them to either !asklemmyafterdark@lemmy.world or !asklemmynsfw@lemmynsfw.com.
NSFW comments should be restricted to posts tagged [NSFW].
5) This is not a support community.
It is not a place for 'how do I?', type questions.
If you have any questions regarding the site itself or would like to report a community, please direct them to Lemmy.world Support or email info@lemmy.world. For other questions check our partnered communities list, or use the search function.
6) No US Politics.
Please don't post about current US Politics. If you need to do this, try !politicaldiscussion@lemmy.world or !uspolitics@lemmy.world
7) No Hit-and-Run questions.
Please don't delete your post for no apparent reason. If you plan on deleting a question later, say so in the post, or if you feel that you have a good reason to remove it, message a mod beforehand. It's not fair to the ones who took their time to answer, and it's not in the spirit of the community.
Reminder: The terms of service apply here too.
Partnered Communities:
Logo design credit goes to: tubbadu
view the rest of the comments
online, stumbled upon chronic lyme community at least on 2 different forums(i believed i had lyme one time as i had encountered with a tick but wasnt bitten years before, until i realized most of them had some sort mental issue going on) because i was suffering from some unusual neurological conditions, which lyme may cause.
they believe lyme isnt curable according to them and can explain any range of symptoms, even if its not related to lyme. plus they believe it is endemic in other countries where lyme doesnt occur. and any tick species can carry it. like they believed every skin rash that may look like a bullyesys as a sign of lyme.
they also ended up harassing and issuing death threat against the ACTUAL infectious disease specialist who discovered lyme, because he was contradicting chronic lyme believers. and mostly its midwestern white women who believes this stuff. now to that end, theres a whole industry apparently furthering the delusions. now draws in all sorts of people.
Lyme doctors, naturopaths will try to prey on people by convincing them to take a lyme specific test from a well known questionable company that makes these blood tests. and then they have the LYME mds prescribe them actual Long term antibiotics, months or years on it. they believe the side effects is causing is treating the "chronic lyme" symptoms. at the same time they also take supplements "extraction from plants" as supplemental treatment, again it causes unknown side effects, so they think its treating it. they are getting constant thrush infections, from the ANTIBIOTICS. and the lyme mds, also dont take insurance, red flag here. thier family members have reported, some of them suffered some permanent neurological damage from taking antibiotics for too long, or some wierd plant supplement. and guess which politics they side with.(and this was pre trumps 1st term). very dangerous as it involves MDs preying on people, prescribing them actual meds to things they may not have. and furthering the delusions of "chronic lyme" people.
also any attempt to confront or question chronic lyme will draw thier ire.
basically health conspiracy.
It's chronic fatigue syndrome, which can be triggered by actual Lyme, but hangs around after whatever illness has been cleared from the body. They mistakenly think it's still a bacteria in there. The antibiotics help their symptoms because a broad range of antibiotics act as a strong anti inflammatory in ways current NSAIDs don't, so it feels like it makes them better. The bladder pain community I'm in deals with the same crap of people thinking they have a permanent 'embedded infection' and there are people who take antibiotics for years.
Chronic Fatigue Syndrome/Long Covid is real, though. Probably some autoimmune shit going on. Women are notoriously ignored in medical studies and are more likely to have autoimmune disorders.
When no one helps you, you cling onto the first bullshit that make sense. And let me be clear on how there is absolutely no help for chronic, weird symptoms as a woman. You slowly just start to lose your mind as your life falls apart and no real doctor will offer anything but vitamin D and antidepressants. (It was endometriosis. I had undiagnosed endometriosis for 20 years no one gave a shit about).
Wait. Is chronic Lyme not actually a thing? There are quite a few long/chronic types of things I'm aware of that are quite real, but also still not super well understood. I assumed Lyme was in there with those. Real, but more of a side-side-effect of a disease that breaks something in weird ways for different people.
It's just chronic fatigue syndrome.