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Idk if you have PTSD or CPTSD but one of my good friend is having something similar. Her neurologist thinks it's related to her (quite aggressive) PTSD. Thankfully the neurologist wasn't all "it's all in your head." So she's getting a full work up next week including MRIs and various nerve testing stuff that I personally don't understand lol.
If she learns anything interesting or a specific test can rule anything in or out, I'll come back to your comment here and let you know. Obviously, follow your doctor's advice but, more info can sometimes help.
Sincerely, good luck. I hope they find the cause and theyre able to help you. Health things like this are absolutely terrifying. Your feelings, whatever they may be, are valid. Wishing you the best of luck! โค๏ธ
Thanks that may be true. I have lived through some pretty bad stuff emotionally the last few years with a lot of really bad panic about losing my kids and my home. Might be possible. Weird is that the neighbors wife has the exact same symptoms and progression...
Oh, that does add a twist to everything =\