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It was pretty rough at start. Especially when we were not sure whats happening and after we did, we did not know how the medication was going to effect as it varies a lot person to person, but luckily it has been effective for my dad.
It has also been tough because the cancer effects the immune system, so if i have made plans to travel to home and i get runny nose i need to cancel the trip. Especially because when the medicine stops being effective the cancer will develope quickly, so every time i miss a birthday or christmas, there is possibility that it could be the last one we get.
Since mom has retired now too, they have beem doing lots of travelling and they have come to terms with the disease they are pretty much living to the fullest while his is still fit to travel.
Big suprice was that the disease actually revealed useful side of facebook. There is support group of people having the same disease. It helped dad a lot to understand he should not just stop living his life because of the sickness. The group is little eerie tough as for the obvious reason people in there may suddenly just disapear.
Yes there's a lot of variables and a lot that's hard to predict. Even a runny nose could change things, which is a lot of stress. You don't even know how much time you have. The Facebook group sounds good but I get that it's eerie tough. I hope your family gets as much happiness as you possibly can over this time